More events are coming soon! When your events are confirmed, please let us know via the form below.
19 SEPTEMBER
LHON Awareness Day
Join us in raising awareness about LHON (Leber Hereditary Optic Neuropathy). Events for 2021 are currently in development. Follow us on social media for updated!
19 SEPTEMBER
Run Reigate 5km
The multi-award-winning Run Reigate Half Marathon, 10K Race, 5K Race and Kids Race will be back on 19th September 2021 in Reigate Priory Park. If you’re looking for fantastic scenery, an unbeatable atmosphere and a memorable experience, then come and join Lily Foundation!
19 SEPTEMBER
Deep RiverRock Belfast City Marathon
Join Muscular Dystrophy UK! The Deep RiverRock Belfast City Marathon is one of the leading marathons in the UK and Ireland and is an AIMS certified race.
The race will start at Stormont at 9am and finish in Ormeau Park. It will follow the same route as the Wheelchair Race and the Team Relay Event. The Belfast event is renowned for the incredible local support and crowds to cheer you on throughout your 26.2 miles!
19 - 25 SEPTEMBER
Munch for Mito
Join Mito Foundation's event! Host a "Munch for Mito" and really sink your teeth into awareness raising! Spread the word about mito over morning tea, a drink with friends or even a virtual catch-up.
21 SEPTEMBER
LHON – California Connect
This is a call for those living in California with an interest in LHON. This call takes place every other month on the third Tuesday of the month, at 6pm Pacific. Host Bob Banks facilitates this call. Consider joining the call to share your experiences with others in a similar situation.
22 SEPTEMBER
LHON Sisterhood
Are you a woman who carries an LHON mutation? Whether you’re affected by LHON symptoms or not, you’re invited to be part of the LHON Sisterhood!
This United Mitochondrial Disease Foundation community is intended to provide a safe space for all women who carry an LHON mutation to discuss topics specific to navigating life as a woman impacted by carrying an LHON mutation.
23 SEPTEMBER
Michigan Virtual Support Meeting
Join United Mitochondrial Disease Foundation for a VIRTUAL Support Meeting! You are not alone. Join us to share coping tips and connect with others.
We meet on the 4th Thursday of each month 7:00 – 8:00pm ET
23 SEPTEMBER
FAOD Support Calls
Join MitoAction and call host, FAOD Mom, Stephanie Harry on the 2nd Thursday of each month for a support call for families affected by fatty acid oxidation disorders.
This call is a place where you can openly chat about the joys, challenges, and questions that arise from living with FAODs.
24 SEPTEMBER
Weekly Support Calls
Spend an hour with MitoAction on Fridays for our weekly support group calls!
Our toll-free teleconference support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive individualized support.
25 SEPTEMBER
Light Up for Mito
Light Up for Mito is a global campaign whereby landmarks around the world will be illuminated in green to raise awareness about mito.
