Now - 19 SEPTEMBER

Virtual
worldwide

My Mito Miles 2020

Whether you run, ride, row or simply walk laps around your garden, every mile you cover will be helping to bring positive change to the lives of people with mitochondrial diseases. The Lily Foundation's aim is to reach a total of 24,901 miles, (40,074 km) – a circumnavigation of the world - by the end of World Mitochondrial Disease Week.

Now - 27 SEPTEMBER

Virtual
canada

Scotiabank Calgary Marathon

The Calgary Marathon Charity Challenge has gone virtual! You have from May 31st – Sept 27th to complete events (5k, 10k, half-marathon, marathon & 50k). To sign up, please use the following link to help MitoCanada.

Now - 18 OCTOBER

Virtual
US

Energy for Life Walk

United Mitochondrial Disease Foundation Energy for Life Walk (& Run) events this will be virtual! We invite you to register and fundraise in one of our walk cities listed.

5 - 19 SEPTEMBER

Netherlands

MITO Estafette and 24h Running Challenge

The MITO Estafette (Relay) is a connecting tour throughout the Netherlands to give love to patients with an mitochondrial disease and also families that lost a child. We also want to create more awareness for Mitochondrial Disease and raise money for the important drug research by professor Jan Smeitink and his team that is expected to continue in September.

A journey of more than 1000 km through the Netherlands along 40 Mito homes we call MITO HEART point We asked the MITO HEART Points if they, or someone close to them, can travel the route to the next point. They will do this by bicycle, running, walking and even some patients themselves with their e-bike or mobility scooter. At the MITO HEART Points, the ‘baton’ is handed over to the next one.

For more information and the routes go to our Dutch website (Google translate can help you!)

12 SEPTEMBER

Virtual
Mississauga, canada

Mississauga Virtual WalknRoll 4 MITO

MitoCanada's 5th annual WalknRoll 4 Mito event has gone virtual!

Louise Gibson has been diagnosed with mito along with her sister Rita who passed away in 2018. She will be walking in honour of her. Join Louise in getting closer to the cure for mitochondrial disease one step at a time.

13 - 17 SEPTEMBER

Virtual
Mexico

GENerando Esperanza

Fundación Buba Mexico's virtual event, full of conferences and entretainment, to raise awareness and funds for kids with ECHS1 Deficiency.

 

13 - 19 SEPTEMBER

Virtual
Australia

Munch for Mito

Mito Foundation's NEW event! Host a "Munch for Mito" and really sink your teeth into awareness raising! Spread the word about mito over morning tea, a drink with friends or even a virtual catch-up.

 

13 - 19 SEPTEMBER

Canada

2020 Proclamations

Across Canada, cities are showing their support for Mitocanada and raising awareness for mito. Canadian cities have proclaimed Mitochondrial Disease Awareness Week.

You can download and share the proclamation certificates for those cities who have provided them.

Keep checking back, as more proclamations will be added each week!

13 SEPTEMBER

Worldwide

Light Up for Mito

Light Up for Mito is a global campaign whereby landmarks around the world will be illuminated in green to raise awareness about mito.

13 SEPTEMBER

Virtual
US

Let's Tackle Mito

Record a video of yourself throwing and catching a football (or any ball or item) and send it to us so we can compile with others to show at the end of Awareness Week how we are all working together to #tacklemito!

13 SEPTEMBER

Edinburgh, UK

Edinburgh Kiltwalk

Take a breezy stroll around the historic streets of Scotland's capital city in support of The Lily Foundation! There are three walks of varying lengths to choose from, and this year all charities taking part will receive a 50% boost on top of their fundraising total.

13 SEPTEMBER

Newcastle, UK

Great North Run

Every year, more than 55,000 runners come from across the globe to run the Great North Run, the world’s largest, most prestigious half-marathon. Join Muscular Dystrophy UK #TeamOrange.

 

13 - 19 SEPTEMBER

Your home, canada

Porch Light Up

MitoCanada invites you to swap out your standard porch light and replace with a green light bulb. Your green light will spark great conversations and help raise valuable awareness for mito!

13 -19 SEPTEMBER

Virtual
New zealand

Kawakawa Bay Virtual Fun Run

Run / walk either 5km / 10km /21.1km or 42.2km during the Awareness Week. The 21.1km and 42.2km can be done in one single run or you can accumulate this distance over the period of that week.

14 SEPTEMBER

Virtual
US

"Two Disabled Dudes" Community Support Call

Join MitoAction and Kyle Bryant of the Two Disabled Dudes for a community call to encourage and inspire you as we kick off this exciting week. The topic of the call will be: Life Is About How We React. Registered participants will be entered into a raffle to win a copy of Kyle's book.

15 SEPTEMBER

Virtual
US

Peloton Ride with CEO

If you have access to a Peloton bike, come and ride with MitoAction's CEO. Add the hashtag #moveformito to your profile to ride for mito!

15 SEPTEMBER

Virtual
Italy

Webinar "Empowerment strategies and social inclusion"

Mitocon will host this webinar, organised in collaboration with the Paideia Foundation (Turin, Italy), is dedicated to promoting the empowerment of parents of children with a mitochondrial disease.

15 SEPTEMBER

Virtual
Indianapolis, US

Indianapolis Virtual Support Meeting

Join United Mitochondrial Disease Foundation for a virtual support meeting to share coping tips and connect with others (the third Tuesday of each Month). Many of the virtual support group meetings are promoted locally, however, we will always welcome patients and families to attend regardless of location.

15 SEPTEMBER

Virtual
UK

Online presentation "Discovering therapeutics for mitochondrial disease"

University of Exeter's online pre-recorded presentation highlighting the research ongoing in the laboratory of Prof. Matt Whiteman and Dr. Timothy Etheridge into mitochondrial disease using established C. elegans strains of specific mitochondrial mutations. The presentation will cover a basic overview of our research and methods (videos of healthy animals vs animals harbouring mitochondrial mutations showing poor health, real-time images of mitochondrial differences in these animals etc. ) and the potential of our novel mitochondria-targeted donors to treat these pathologies to improve health. It is intended to be a simple and educational presentation to show how potential drugs that improve mitochondrial function could be possible in human settings of mitochondrial disease to improve health.

Download the presentation here. The slides are recorded, please click on each slide and a voice over will will be heard.

University of Exeter_Mitochondrial week presentation

 

16 SEPTEMBER

Virtual
US

Light a Light for Mito

On this day, we remember all the Mito Warriors we have loved and lost. We celebrate each of them and keep their lights shining. You can submit your stories to info@mitoaction.org.

16 SEPTEMBER

Virtual
Stockholm, Sweden

Abliva’s Mitochondrial Day

Abliva AB will host a virtual meeting for health care professionals, researchers and the media who have an interest in mitochondrial disease, as well as patients, their families and the general public.

16 -20 SEPTEMBER

London, UK / Paris, France

London to Paris Tour de France

Join The Lily Foundation - this 5 day incredible cycle connects two of the world’s most chic capital cities! You will make your way through beautiful English villages and into the stunning countryside of rural France, passing historical landmarks and famous battlefields until you reach Paris.

16 -20 SEPTEMBER

Virtual
UK

Mitochondria and Us

This online webinar will share recent advances in mitochondria research from a mix of interdisciplinary perspectives, expertise, practice and personal experiences to explore the impact of mitochondria research and related disorders on society.

The event will be held in two parts:
  1. The science - Debunking Mitochondria
    Interdisciplinary approaches : combining Biology, Chemistry, Physics, Data science and Medicine
  2. The Impact on Society : Patient perspectives, Sociology, Bioethics, Design and Public Engagement

17 SEPTEMBER

Virtual
US

"Magic Bracelet" Watch Party / Film Q& A with the director

Grab your popcorn, gather your friends and family and be inspired and empowered by the 1st Mito Movie Watch Party with the award winning film “The Magic Bracelet,” written by Mito Warrior Rina Goldberg.

* Joining the Watch party for a post film Q and A will be Oscar Winner, Diablo Cody (Juno), Film director, Jon Poll (Bombshell, The Greatest Showman) and film producer and founder of Make a Film Foundation, Tamika Lamison.

17 SEPTEMBER

Virtual
Worldwide

Symposium - Gene Therapies and the Promise for Mitochondrial Disease

Join us from 9:00am - 11:30am (AEST) for the annual Mito Foundation Symposium. This year's theme is "Gene Therapies and the Promise for Mitochondrial Disease".

Curated by two leading Australian mitochondrial disease experts, Prof Mike Ryan and Prof David Thorburn, the Symposium will explore the latest in gene therapies and the implications for future diagnosis and treatments.

This is a rare opportunity to hear about the developments in mitochondrial research directly from the researchers. You'll have the opportunity to ask questions after each presentation.

 

17 SEPTEMBER

Virtual
Italy

Webinar "The management of mitochondrial patients in resuscitation and in emergency situations"

Mitocon will host this webinar, which is dedicated to presenting the Guidelines "The management of mitochondrial patients in resuscitation and in emergency situations", by Prof. Serenella Servidei (Agostino Gemelli University Hospital Foundation Rome).

18 SEPTEMBER

Virtual
US

Virtual Paint Night

Get crafty with Energy Walk Team, Frankie's Knights and create your own masterpiece designed by Mito Warrior Frankie!

19 SEPTEMBER

Virtual
US

Virtual Energy Walk

Join us as we virtually #moveformito to raise awareness of mitochondrial disease. No matter how you participate, you're making a different in the lives of patients and families who rely on us each and every day.

18 SEPTEMBER

Virtual
US

Teen and Young Adult Virtual Happy Hour (Ages 16-35)

Join United Mitochondrial Disease Foundation every Friday for this alcohol-free “Virtual Happy Hour”! It is tough being stuck at home, but you are not alone. Let’s get together, share coping tips and have some FUN!

19 SEPTEMBER

Virtual
Global

LHON Awareness Day

Join us for the inaugural LHON Awareness Day event! LHON: One Condition, Many Stories is a series of inspiring and informative interviews with LHON patients and their families, as well as representatives from patient advocacy organisations.

Where:  Facebook Live @internationalmitopatients
When:  5 - 7pm (CET)

19 SEPTEMBER

Virtual
Italy

LHON webinar "Therapies for Leber's Hereditary Optical Neuropathy"

Mitocon will host an LHON webinar "Therapies for Leber's Hereditary Optical Neuropathy", organised to celebrate the International LHON Awareness Day, is dedicated to therapies for Leber's Hereditary Optical Neuropathy, with the participation of Prof. Valerio Carelli and Dr. Chiara La Morgia (University of Bologna), Prof. Piero Barboni (San Raffaele Hospital Milan) and Dr. Annamaria De Negri (San Camillo Forlanini Hospital Rome).

19 SEPTEMBER

Dorset, UK

Jurassic Coast Challenge

Sign up for The Lily Foundation - walk, Jog or Run the spectacular Jurassic Coast - a World Heritage Site. A Poole Harbour start - it's on to Corfe Castle, across to Lulworth Cove, past Durdle Door, with ups and downs all the way to the Weymouth halfway point.

19 SEPTEMBER

Lancaster, UK

North West September Skydive

Skydive for Muscular Dystrophy UK  and you can make a real difference to children and adults affected by muscle-wasting conditions. By the time you land, you’ll have funded over eight hours of ground-breaking research!

19 SEPTEMBER

Surrey, UK

Spring Ball

Please join Muscular Dystrophy UK for a special one-off event at the Runnymede Hotel, Surrey. There will be delicious food and wine, an exciting auction and fundraising games, along with live music and of course dancing!

19 - 20 SEPTEMBER

SOUTH QUEENSFERRY, UK

Spartan Scotland

Join the Spartan Movement and help The Lily Foundation beat mito! Three distances are available - there is even a kids race.

20 SEPTEMBER

Virtual
Syracuse / NY, US

Virtual Energy Walk - Syracuse, NY

Join the Payne Family for the 2nd annual Energy Walk in Syracuse, NY. There will be raffles, glitter tattoos, balloon animals and more!