When your events are confirmed, please let us know via the form below.
11 - 25 SEPTEMBER
2021 Walk N’ Roll 4 Mito
You’re invited to move with MitoCanada! Walk, run, ride, scoot…. use your energy to move when and where it is best for you anytime during the month of September.
Join event founder and MitoChampion, Louise Gibson when and where you can as we support our ultimate goal to ensure all lives are powered by healthy mitochondria.
Until we reach that day, we need to support the Mito Community through education, awareness and research to prevent, restore and treat mito.
Want to join Louise from your home community? Register as an individual, join a
team or create a team of your own by clicking below.
18 - 26 SEPTEMBER
The Dutch Energy4All Foundation organise the 2nd edition of the MITO Estafette! This is a relay (estafette in dutch) with 58 MITO Heart Points; homes of children and adults with Mitochondrial Disease and also families who lost their child. At every point the relay green heart is passed on, there is a connection made and it makes us feel we’re not alone in this.
This year we have 4 routes starting from different points in the Netherlands all going along their points to Nijmegen where the expertise centre is located and also the research for a cure bij dr. Smeitink and his team of Khondrion and the Radboudumc hospital.
Every family can decide how to bring the relay green heart to the next point. With 8 army vehicles, a wheelchair motorbike, cycling, with a boat, by car, with trucks, running, on skeelers pushing the wheelchair, walking, on a motorcycle, by wheelchair and more. Very special.
On Sunda 26th september the last families bring the green hearts to the finish where supporters and also dr. Smeitink will welcome them to finish our MITO Estafette.
Donate (Doneer nu) here to support the research for cure https://actie.energy4all.nl/
For more information about the routes and the MITO Heart points (in Dutch) click below.
LHON Awareness Day
Run Reigate 5km
Energy for Life Walkathon Columbus
United Mitochondrial Disease Foundation invites you to register and fundraise in theie walk in Columbus. On the virtual event day, they will go LIVE on the event specific Facebook Page for the opening ceremony to celebrate their teams as they fundraise toward their goals. Gather together on walk day with family, friends and the mito community!
Deep RiverRock Belfast City Marathon
Join Muscular Dystrophy UK! The Deep RiverRock Belfast City Marathon is one of the leading marathons in the UK and Ireland and is an AIMS certified race.
The race will start at Stormont at 9am and finish in Ormeau Park. It will follow the same route as the Wheelchair Race and the Team Relay Event. The Belfast event is renowned for the incredible local support and crowds to cheer you on throughout your 26.2 miles!
19 - 25 SEPTEMBER
Munch for Mito
Join Mito Foundation's event! Host a "Munch for Mito" and really sink your teeth into awareness raising! Spread the word about mito over morning tea, a drink with friends or even a virtual catch-up.
19 - 25 SEPTEMBER
Light Up for Mito eCard
Join Mito Foundation to shine the light on mito. This is your chance to be a part of Light Up for Mito – (without leaving your home!)
Buy and share the beautiful animated eCard to help brighten the futures of people impacted by mito. Your one simple act today will have many benefits.
All Japan Mitochondrial Disease Patient and Family Association Symposium
This symposium will bring together the researchers and mito community from all over Japan. Please use the button below to sign-up for updates.
LHON – California Connect
This is a call for those living in California with an interest in LHON. This call takes place every other month on the third Tuesday of the month, at 6pm Pacific. Host Bob Banks facilitates this call. Consider joining the call to share your experiences with others in a similar situation.
FACE it - Awareness Campaign/ Childhood Dementia Day
Thousands of Australian children are suffering and dying slowly from dementia, most will die before they turn 18, some will die in infancy. It’s time to FACE it.
One of the biggest problems is that no one knows childhood dementia exists. Let’s make sure governments, researchers, social and health care professionals, and communities know that this is a problem we cannot ignore. No family should be left to watch their child suffer and die.
The 22nd of September is the first ever Childhood Dementia Day. Now that you know, make a difference. Paint your face, or better yet ask a child to, take a picture of how you look and make it your profile picture on Linkedin, Facebook, or Instagram. Link to our page https://www.childhooddementia.
Are you a woman who carries an LHON mutation? Whether you’re affected by LHON symptoms or not, you’re invited to be part of the LHON Sisterhood!
This United Mitochondrial Disease Foundation community is intended to provide a safe space for all women who carry an LHON mutation to discuss topics specific to navigating life as a woman impacted by carrying an LHON mutation.
Mito Foundation Symposium
This year's Mito Foundation Symposium will bring together world-leading researchers and mito experts to discuss "Mitochondrial Donation: Beyond Legislative Change."
Please click the button below to see the session description and speakers.
Michigan Virtual Support Meeting
Join United Mitochondrial Disease Foundation for a VIRTUAL Support Meeting! You are not alone. Join us to share coping tips and connect with others.
We meet on the 4th Thursday of each month 7:00 – 8:00pm ET
FAOD Support Calls
Join MitoAction and call host, FAOD Mom, Stephanie Harry on the 2nd Thursday of each month for a support call for families affected by fatty acid oxidation disorders.
This call is a place where you can openly chat about the joys, challenges, and questions that arise from living with FAODs.
Mitochondria and Brain Workshop - A focus on Neurodegenerative Diseases
Join University of Toronto's workshop (9:30 - 11:00 am EST /2:30 - 4:00 pm UK)!
AGENDA (*times shown in EST)
- Welcome Remarks:
9:30am - 9:40am Dr. Ana Andreazza, Mitochondrial Innovation Initiative
Dr. Grainne Gorman, Wellcome Centre Mitochondrial Research
- 9:40am - 10:00am Dr. Graham Collingridge:
Director Tanz Centre for Research in Neurodegenerative Disease "Mechanisms of synaptic weakening and loss in health and disease"
- 10:00am - 10:20am Dr. Daniel Erskine: Alzheimer’s Research
UK Fellow Wellcome Centre for Mitochondrial Research, Newcastle University "The role of mitochondria in cellular vulnerability in Lewy body dementia"
- 10:20am - 10:40am Dr. Suneil Kalia:
Scientist, Krembil Research Institute Parkinson's Disease "Chaperone networks regulating mitochondrial dysfunction in Parkinson's disease"
- 10:40am - 11:00am Dr. Amy Reeve: Parkinson's Research
UK Fellow, Wellcome Centre for Mitochondrial Research, Newcastle University "Further insight into the contribution of mitochondrial dysfunction to Parkinson’s disease"
- 11:00am - 11:30am Panel Discussion with Moderator - Dr. Sandra Black, Senior Scientist, Sunnybrook Research
Institute Remarks & Q&A
Weekly Support Calls
Spend an hour with MitoAction on Fridays for our weekly support group calls!
Our toll-free teleconference support call creates a safe and confidential place to connect with others with mito. Parents, spouses, caregivers, and adults on the mito journey are welcome to call in each week to share their experiences, ask a question, and offer and receive individualized support.
Light Up for Mito
Light Up for Mito is a global campaign whereby landmarks around the world will be illuminated in green to raise awareness about mito.