Join us in raising awareness about LHON (Leber Hereditary Optic Neuropathy) on the inaugural LHON Awareness Day on Saturday 19 September 2021!
The first LHON Awareness Day was held on 19 September 2020. "LHON: One Condition, Many Stories" was a series of inspiring and informative interviews with LHON patients and their families, as well as representatives from patient advocacy organisations. We shared the stories of patients from countries including Italy, Spain, Portugal, Sweden, Norway, Germany, the Netherlands and Canada.
It was live streamed on social media and recorded for those unable to attend. The video is available on IMP's Facebook page to watch.
Events for World Mitochondrial Disease Week 2021 are currently in development. Follow us on social media for updated!
IMP has worked with experts in LHON to produce a brochure aimed at patients, their families and ophthalmologists. Please download it and share it with your eye doctor and with others to help them understand more about LHON.
The brochure is currently available in English and Italian. It will be translated into other languages where possible.
LHON Awareness Day is hosted by IMP. Thank you to the members of the LHON EU group who initiated the establishment of an LHON Awareness Day.