Join us in raising awareness about LHON (Leber Hereditary Optic Neuropathy) on the inaugural LHON Awareness Day on Saturday 19 September!

LHON: One Condition, Many Stories is a series of inspiring and informative interviews with LHON patients and their families, as well as representatives from patient advocacy organisations.

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    – Ever wondered if patients living in different countries had different experiences of living with LHON, the diagnostic journey and the care they receive?

    – Do you wonder how LHON will affect your, or your child’s, future?

Join this interactive, thought-provoking virtual event. Hear the stories of patients from countries including Italy, Spain, Portugal, Sweden, Norway, Germany, the Netherlands and Canada (TBC).

Join event: visit IMP’s Facebook page and watch live between 5 – 7pm (CET)

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*If you can’t make the Live event, don’t worry! The video will be available on IMP’s Facebook page to watch after the Live event.

IMP has worked with experts in LHON to produce a brochure aimed at patients, their families and ophthalmologists. Please download it and share it with your eye doctor and with others to help them understand more about LHON.

The brochure is currently available in English and Italian. It will be translated into other languages where possible.

LHON_Brochure_English

LHON_Brochure_Italian

LHON Awareness Day is hosted by IMP. Thank you to the members of the LHON EU group who initiated the establishment of an LHON Awareness Day.